A recent study published in the Journal of Autism and Developmental Disorders found that a significant majority (73%) of informational videos on TikTok tagged with "#Autism" contain inaccurate or overgeneralized information about autism. Despite the prevalence of misinformation, these videos have amassed billions of views, highlighting the potential for widespread misconceptions about autism on the platform. ...
The writer of that psychology today article put her son in ABA, and actually endsup advocating for it (as long as the ABA therapist used a modern, child first approach.) I agree with her.
My son has been in modern ABA since he was two after his developmental pediatrician recommended it. (I have aspergers myself, as does my kid’s father - both of us never required ABA as kids though I had speech therapy/saw a psychologist about my “acting out” etc) So I had no reason to be suspicious of ABA, or knew about how it used to be. However my son’s experience been so positive I never considered that it might have (pretty horrible) origins or were started by a person like that.
I’ve seen many sessions at two different practises, and from what I’ve experienced, the modern version is VERY divorced from the old methods you are describing.
The place my son attends (he still goes there twice a week) they teach kids to be proud of being autistic, and to understand themselves as well as advocate for what they want using group-play based activities. Stimming and other typical ASD behaviours are not ever discouraged, though communication is (however they prefer to do it.) It’s not about forcing them to act like normies. It’s about giving them the tools to understand themselves and others. They also have parent classes to help understanding and acceptance of ASD behaviours, and how to advocate for your kid in school and other settings.
My son used to be basically non-verbal, he would headbutt and bite us frequently as a result of his frustrations. So had we tried putting our son in speech therapy, however we took him out of that since the methods were very repetitive and frustrating for him. It was much harsher than what he’s experienced in ABA. ABA had my kid actually asking for what he wanted, didn’t want, enaging in play… also the biting and headbutting us stopped. I’m not sure why seeking out some kind of therapy to help him communicate better is seen as “forcing him to conform”…
After seven years of ABA, my kid is happy as hell. He loves his therapy group and his therapists. He’s still going twice a week, he’s learning about online safety, multiplayer gaming (taking turns and playing as a team) and how to deal with bullies. They have a video game playing league.
It’s important for people who experienced the horrific side of ABA to voice their experiences and advocate for acceptance of neurodiversity in all its forms. I in no way want to dismiss the trauma of someone who had to experience ABA the way it used to be.
But call ALL forms of modern ABA or other behavioural therapies for kids ‘coersive’ or ‘abusive’ - or to compare them to something like conversion therapy? …I don’t know even know how to describe it. But it is very, very very off base and misinformed at the very least.
I’m not going to argue, since it seems like you have a pretty strong opinion about this. (As do I)
But I wanted to put it out there that doctors tend to recommend modern ABA for a reason. Evidence-based methods matter. I recommend it myself, provided you investigate the clinic first to see what their approach is.
As someone who grew up with a (quite) younger sibling in the most disabling end of the spectrum, witnessing all the development from infancy to adulthood, I am very reluctant to recommend for/against any specific approach, because I think that what matters most is the people who actually practice it. So, I absolutely agree with the last sentence of your comment.
The negative aspects of ABA are not entirely in the past. I am not in a position to verify the information I will quote, but this is mentioned in the third of the linked articles:
Mandell says ABA needs to renounce that history — especially the early reliance on punishments like yelling, hitting, and most controversially electroshocks, which are still used in a notorious residential school in Massachusetts called the Judge Rotenberg Educational Center.
To be clear: I am not arguing with your experience here. Rather, I am pointing out how important is the kind of practice of whatever theory and what the focus of the practice actually is. It’s really very difficult to find professionals who are actually both able and willing to care properly for autistic people. At least in the place I live.
Beyond that, I have to say that there are many things that now have positive effects on people’s lives that weren’t exactly positive in their original forms.
The writer of that psychology today article put her son in ABA, and actually endsup advocating for it (as long as the ABA therapist used a modern, child first approach.) I agree with her.
My son has been in modern ABA since he was two after his developmental pediatrician recommended it. (I have aspergers myself, as does my kid’s father - both of us never required ABA as kids though I had speech therapy/saw a psychologist about my “acting out” etc) So I had no reason to be suspicious of ABA, or knew about how it used to be. However my son’s experience been so positive I never considered that it might have (pretty horrible) origins or were started by a person like that.
I’ve seen many sessions at two different practises, and from what I’ve experienced, the modern version is VERY divorced from the old methods you are describing.
The place my son attends (he still goes there twice a week) they teach kids to be proud of being autistic, and to understand themselves as well as advocate for what they want using group-play based activities. Stimming and other typical ASD behaviours are not ever discouraged, though communication is (however they prefer to do it.) It’s not about forcing them to act like normies. It’s about giving them the tools to understand themselves and others. They also have parent classes to help understanding and acceptance of ASD behaviours, and how to advocate for your kid in school and other settings.
My son used to be basically non-verbal, he would headbutt and bite us frequently as a result of his frustrations. So had we tried putting our son in speech therapy, however we took him out of that since the methods were very repetitive and frustrating for him. It was much harsher than what he’s experienced in ABA. ABA had my kid actually asking for what he wanted, didn’t want, enaging in play… also the biting and headbutting us stopped. I’m not sure why seeking out some kind of therapy to help him communicate better is seen as “forcing him to conform”…
After seven years of ABA, my kid is happy as hell. He loves his therapy group and his therapists. He’s still going twice a week, he’s learning about online safety, multiplayer gaming (taking turns and playing as a team) and how to deal with bullies. They have a video game playing league.
It’s important for people who experienced the horrific side of ABA to voice their experiences and advocate for acceptance of neurodiversity in all its forms. I in no way want to dismiss the trauma of someone who had to experience ABA the way it used to be.
But call ALL forms of modern ABA or other behavioural therapies for kids ‘coersive’ or ‘abusive’ - or to compare them to something like conversion therapy? …I don’t know even know how to describe it. But it is very, very very off base and misinformed at the very least.
I’m not going to argue, since it seems like you have a pretty strong opinion about this. (As do I)
But I wanted to put it out there that doctors tend to recommend modern ABA for a reason. Evidence-based methods matter. I recommend it myself, provided you investigate the clinic first to see what their approach is.
As someone who grew up with a (quite) younger sibling in the most disabling end of the spectrum, witnessing all the development from infancy to adulthood, I am very reluctant to recommend for/against any specific approach, because I think that what matters most is the people who actually practice it. So, I absolutely agree with the last sentence of your comment.
The negative aspects of ABA are not entirely in the past. I am not in a position to verify the information I will quote, but this is mentioned in the third of the linked articles:
To be clear: I am not arguing with your experience here. Rather, I am pointing out how important is the kind of practice of whatever theory and what the focus of the practice actually is. It’s really very difficult to find professionals who are actually both able and willing to care properly for autistic people. At least in the place I live.
Beyond that, I have to say that there are many things that now have positive effects on people’s lives that weren’t exactly positive in their original forms.