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I find your situation just as sucky, sometimes I find dry heaving is worth because there is no end, at least if I’m bringing something up there is an end in sight.
Unfortunately and fortunately I’m not American, we don’t really have anything like the Mayo clinic, but at least my doctors and specialist appointments have all been less than $500 out of pocket every time.
Sorry to hear that there is no specialist clinic for you, but I hope you find a solution soon!